When your loved one is diagnosed with a developmental disability, you may feel a range of emotions, including fear, doubt, uncertainty, powerlessness and more.
While embarking on this new path, we encourage you to contact us. We are happy to connect you with other families who are traveling the same path as you are, link you with area resources and share in the achievements of your loved one.
Where do I start?
If your loved one has been diagnosed with a developmental disability before the age of three, please contact your local Infant-Toddler connection. This is known as an early intervention agency. They can assist with identifying services that may be beneficial for your loved one. Begin learning about special education, community services in your area and the Medicaid waiver system.
My school-aged child was diagnosed with a developmental disability.
If your school-aged child has been diagnosed with a developmental disability, please work with your education team on linking with community-based services. We are happy to assist as well! Learn about special education services, community-based resources and Medicaid waivers.
My child needs help/therapies/treatment. Where do I start?
We are glad you asked! We strive to be the community's first stop for information on available services! Please call us and describe the services you are looking for. We have intimate knowledge of the waiver system, speech, occupational, physical therapy and behavioral treatment services.
My loved on is experiencing a crisis. How can I help them?
If your loved one is experiencing a crisis, please call 9-1-1. You can ask for a crisis response officer to be dispatched. A crisis response officer has specialized training in responding to those with mental heath and developmental disabilities.
There are times that it may be necessary to take your loved one to the hospital for an evaluation to ensure his or her safety. Once at the hospital, staff may contact the local community services board to evaluate if the person is a threat to himself or others. If the answer is yes, the staff will begin searching for a hospital bed. Please be aware that many times this will take place out of the area, as there are few children's crisis hospitalization options available.
My loved on is transitioning from middle school. What do I need to know?
Again, please be sure you know about Medicaid waivers! Most services your loved one will need after graduation are funded by the waiver system, and, unfortunately, the wait list to access these services can be over 15 years. Be sure you are discussing transition plans as soon as your child turns 14. Talk with your loved one about what they would like to do once their high school career is over. While it may change several times, it is important to start the conversations early.
My loved one is graduating. What happens next?
By this time, we hope your child has a Medicaid waiver. This will pay for job coaching, day support programs, residential care and other services. Be sure to talk service providers about the unique goals of your loved one. Talk with several providers until you find the best fit.
The Infant & Toddler Connection of Virginia provides supports and services for babies and their families who are suspected of having a developmental delay so that families can help their child learn during everyday activities and routines.
Contact: Gina Zydelis, Central Point of Entry for Winchester, Frederick, Clarke & Shenandoah
Phone: 540-635-2452 x27
New Path is a support program for families in receiving early intervention services in Virginia. This program is a service of The Arc of Virginia.
The disAbility Law Center helps with disability-related problems like abuse, neglect, and discrimination. The organization also assists individuals with disabilities obtain services and treatment. All callers receive help. Individuals with problems, targeted in specific program goals, may also receive advocacy services and/or legal representation.
The Endependence Center provides assistance to individuals with disabilities to resolve discrimination complaints in all areas of life such as housing, education, employment, transportation, public accommodation and community programs.
Formed Families Forward is a non-profit organization dedicated to supporting foster, kinship, and adoptive families of children and youth with disabilities and other special needs. They serve families, educators and child welfare professionals in the Northern Virginia area; however, they are willing to speak to families outside their service area.
Phone: (703) 539-2904
Case management for adults and children with intellectual disabilities.
Administration Phone: 540-636-4250
Shenandoah County: 540-459-5180
Winchester Area: 540-667-8888
Care Connection for Children is a statewide network of centers of excellence for children with special health care needs (CSHCN) that provide leadership in the enhancement of specialty medical services; care coordination; medical insurance benefits evaluation and coordination; management of the CSHCN Pool of Funds; information and referral to CSHCN resources; family-to-family support; and training and consultation with community providers on CSHCN issues. The Blue Ridge Care Connection network provides services to those in Winchester, Frederick, Clarke and Shenandoah. Children with special health care needs eligible for CCC services are those who have disorders that:
Age requirement is birth to 21 years of age, and recipient must be a Virginia resident.
The Virginia Department for Aging and Rehabilitative Services, in collaboration with community partners, provides and advocates for resources and services to improve the employment, quality of life, security, and independence of older Virginians, Virginians with disabilities, and their families.
Phone: (540) 722-3453
Blue Ridge Opportunities is a 501 (c)  non-profit corporation that strives to build foundations on which individuals with disabilities can achieve success by providing job skills assessment, training and placement, day support, and community integration for individuals with a variety of needs. Blue Ridge Opportunities is licensed by the Virginia Department of Behavioral Health and Disability Services (DBHDS) and certified by the Commission on Accreditation of Rehabilitative Services (CARF).
NW Works provides the following services:
Shen-Paco Industries, Inc. is a non-profit community based agency providing vocational, developmental, educational, and rehabilitative services to adults with disabilities in Shenandoah and Page Counties.
Phone: (540) 477-2049
The Shenandoah Valley Workforce Investment Board is an incorporated, non-profit organization serving 16 localities in Northwestern Virginia. The SVWIB operates five Valley Workforce Centers and directs numerous workforce initiatives partnering with business, education, economic development, and other community and faith-based organizations to thoroughly understand the current labor market and to develop innovative solutions to address broad regional workforce issues.
Specific programs include Workforce Investment Act (WIA), Adult and Dislocated Worker Programs, Youth Programs, Valley OJT, and the Shenandoah Valley Energy Partnership.
Phone: (540) 545-4146
What is the CCC Plus waiver?
The Commonwealth Coordinated Care (CCC) Plus Waiver [1915 (c)] provides care in the community rather than in a nursing facility (NF) or other specialized care medical facility. This new waiver combines Elderly or Disabled with Consumer Direction (EDCD) and Technology Assisted (TECH) waivers.
Who is eligible for the CCC Plus Waiver?
What services are covered under the CCC Plus Waiver?
• Personal Emergency Response System (PERS), includes Medication Monitoring
• Respite Services (Agency- and Consumer- Directed)
• Services Facilitation
• Transition Services
• Adult Day Health Care
• Assistive Technology (AT) • Environmental Modification (EM)
• Personal Care Services (Agency- and Consumer- Directed)
• Skilled Private Duty Nursing (RN and LPN)
Waiver enrollment process
What is the Building Independence Waiver?
The Building Independence (BI) Waiver provides services and supports in the areas of community engagement, employment, day services, residential, behavioral, crisis, medical, assistive and Smart Home technology, environmental modifications and more
Who is eligible for the Building Independence Waiver?
What services are covered under the Building Independence Waiver?
Waiver enrollment process
What is the Family & Individual Support Waiver?
The Family and Individual Supports (FI) Waiver provides services and supports in the areas of community engagement, employment, day services, residential, crisis, medical, assistive and Smart Home technology, environmental modifications and more. This waiver serves individuals of any age.
Who is eligible for the Family & Individual Support Waiver?
What services are covered under the Family & Individual Support Waiver?
What is the enrollment process?
Contact Northwestern Community Services Board Warren County Clinic (540-636-2931) to schedule an evaluation.
What is the Community Living Waiver?
The Community living waiver serves people of any age with the most comprehensive continuum of services available in the developmental disabilities waiver program. It provides supports to those with the most intensive medical and behavioral needs. It replaces the former intellectual disability waiver.
Who is eligible for the Community Living Waiver?
What services are covered under the Community Living Waiver?
What is the enrollment process for the Community Living Waiver?